Watch past convenings to get up to speed on the ongoing work toward data disaggregation nationwide.
Watch past convenings to get up to speed on the ongoing work toward data disaggregation nationwide.
Subscribe today to our Data Disaggregation Action Network (D-DAN) listserv to receive our monthly newsletter, policy updates, invitations to future virtual convenings, and opportunities for action to promote the national movement for data equity.
Past Data Disaggregation Convenings
A Renewed Direction for Directive 15
Date: March 21, 2023

Thank you for joining us for A Renewed Direction for Directive 15: A Convening on OMB Race and Ethnicity Data Standards Revision. We are so grateful for your participation in these important conversations as we work together to ensure accurate race and ethnicity data collection for all of our communities.
Brief History of OMB Race and Ethnicity Data Standards
- Terri Ann Lowenthal, Census expert and consultant to The Leadership Conference
Initial Proposals For Updating Statistical Policy Directive No. 15
- Bob Sivinski, U.S. Office of Management and Budget, Chair of Federal Interagency Technical Working Group on Race and Ethnicity Standards
- Karen Battle, U.S. Census Bureau, Co-Chair of Federal Interagency Technical Working Group on Race and Ethnicity Standards
Spotlight on U.S. Census Bureau Research to Inform Discussions for Improving Federal Race and Ethnicity Data Standards
- Nicholas Jones, U.S. Census Bureau, Senior Advisor, Race/Ethnicity Research and Outreach, Population Division
- Roberto Ramirez, U.S. Census Bureau, Assistant Division Chief, Special Population Statistics, Population Division
Disaggregating Data by Age and Administrative Records
- Dr. Bill O’Hare, consultant to The Leadership Conference Education Fund and The Count All Kids Campaign
Directive 15 Fact Sheet
This fact sheet provides guidance on the U.S. Office of Management and Budget’s (OMB) Statistical Policy Directive No. 15 and explains why OMB Directive 15 no longer reflects the full racial and ethnic diversity of the nation’s population or the way many people choose to identify themselves. It also outlines improvements that many civil rights stakeholders are calling for to modernize the standards.
Full text of Directive 15
Last updated in 1997, OMB’s Statistical Policy Directive No. 15: Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity (Directive 15) sets forth the minimum set of categories that federal agencies must use when they collect information on race and ethnicity.
The U.S. Census Bureau’s 2010 Census Race and Hispanic Origin Alternative Questionnaire Experiment (AQE)
Conducted during the 2010 Census with a sample size of roughly 500,000 addresses, the AQE focused on improving the race and Hispanic origin questions by testing different questionnaire design strategies. The results of the AQE showed that a combined race and ethnicity question format significantly reduced the proportion of respondents selecting “Some Other Race” (which is harder to analyze) and improved data accuracy and reliability.
The U.S. Census Bureau’s 2015 National Content Test – Race and Ethnicity Analysis Report
Conducted using a nationally representative sample of 1.2 million housing units in the United States, including Puerto Rico, the 2015 National Content Test (NCT) assessed optimal design elements for questions on race and ethnicity in preparation for the 2020 Census. Analysis of the NCT showed that a combined question with a distinct Middle Eastern/North African (MENA) category more accurately reflects how many people self-identify, yielding higher quality data. The results also showed that a combined question would not reduce reporting for any of the major race categories except White, compared to data collected through separate questions.
Federal Register Notice
Providing initial proposals from the Federal Interagency Technical Working Group on Race and Ethnicity Standards for revising OMB’s Directive 15. Responses to this notice will be shared with the working group to help the working group develop their final recommendations to OMB for revisions to Directive 15.
History and Implications of OMB Race and Ethnicity Data Standards
This webinar from The Leadership Conference prior to our Directive 15 convening includes history of the standards and efforts to revise them, an overview of research findings supporting the need for several key revisions to the standards, and a discussion of the uses and implications of federal race and ethnicity data for civil rights programs, research, and policy development. Slides and other resources from the webinar are available here.
Disaggregation Nation!
2024 Data Equity Summit
Date: October 24, 2023
Hosted by: Data Disaggregation Action Network | The Leadership Conference Education Fund

Who counts depends on who is counted.
Thank you for joining us at the July 2024 Disaggregation Nation! Data Equity Summit in Detroit, Michigan. We were so grateful to spend the day with our partners and allies working to advance data disaggregation across the country and we appreciated your thoughtful engagement and questions. We hope that the panel discussions, workshops, resources shared, and opportunities to connect with others brought fresh insights and inspiration to your own efforts to advance data equity.
Implementation from the Ground Up: Highlights and Future Policy Targets from the Invisible No More Campaign
- Rana Abdelhamid – Malikah
- Jeemin Cha – Coalition for Asian American Children and Families
- Francesca Perrone – Hispanic Federation
- Taina Wagnac – New York Immigration Coalition
Meeting the Promise of the Revised Federal Race and Ethnicity Data Collection Standards
- Karen Battle – Chief, Population Division, U.S. Census Bureau
- Nicholas Jones – Director, Race/Ethnicity Research & Outreach, U.S. Census Bureau
- Rachel Marks – Chief, Racial Statistics Branch, U.S. Census Bureau
Data Disaggregation: A View from the States
- Scott Powell – Chief Data Officer, State of Michigan
- Jason Rosensweig – Director of Legislative Affairs and Policy, Illinois Department of Human Rights
Implementing New Federal Data Collection Standards: Challenges and Next Steps
- Karen Battle – Chief, Population Division, U.S. Census Bureau
- Nicholas Jones – Director, Race/Ethnicity Research & Outreach, U.S. Census Bureau
- Rachel Marks – Chief, Racial Statistics Branch, U.S. Census Bureau
- Scott Powell – Chief Data Officer, State of Michigan
- Jason Rosensweig – Director of Legislative Affairs and Policy, Illinois Department of Human Rights
Keynote Address
- Jer Thorp – Author of Living in Data, former Library of Congress Innovator in Residence, Former New York Times Data Artist–in–Residence
Data Disaggregation and Artificial Intelligence
- Miranda Bogen – Director, AI Governance Lab, Center for Democracy & Technology
- Caitriona Fitzgerald – Deputy Director, Electronic Privacy Information Center (EPIC)
- Claudia Ruiz – Senior Civil Rights Analyst, UnidosUS
Breakout sessions
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Data Visualization Workshop – Avoiding Territorial Stigmatization: Data Literacy for Data Stewards
- Robert Gradeck – Project Director, Western Pennsylvania Regional Data Center at the University of Pittsburgh Center for Social and Urban Research
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Messaging and Media Training 101
- Sofia Costas – Senior Manager, Strategic Communications, The Leadership Conference Education Fund
Data in Action Part 1: Building and Leveraging Data Ecosystems
- Lloyd Feng – Coalition for Asian American Children and Families
- Sara Ismail – ACCESS/National Network for Arab American Communities
- Emily McRae – Center for Health Innovation
- Aaron Yore–VanOosterhout – Johnson Center for Philanthropy
Data in Action Part 2: Data Disaggregation and Civic Engagement
- Cynthia Romo & Robert Blackmon – AltaMed Health Services Corporation
- Mar Velez & Rosa Flores – Latino Coalition for a Healthy California
- Jeanine Abrams McLean – President, Fair Count
- James Sadler – Director of Research, Baltimore’s Promise
Closing Keynote
- Lurie Daniel Favors – Executive Director, Center for Law and Social Justice
MORNING SESSIONS
Implementation from the Ground Up: Highlights and Future Policy Targets from the Invisible No More Campaign
Moderator: Maya Berry, Executive Director | Arab American Institute
Maya Berry is executive director of the Arab American Institute (AAI). In 1996, she established AAI’s first government relations department, which she led for five years before becoming a legislative director for U.S. House of Representatives Minority Whip David Bonior, where she managed the congressman’s legislative strategy and developed policies on international relations, human rights, immigration, civil rights and liberties, and trade. With a deep knowledge of public policymaking, Maya has helped expand AAI’s work on combating hate crime, protecting the rights of securitized communities, and strengthening our democracy. In her personal capacity, Maya is a long-time Democratic Party activist who served as a member of the 2016 Democratic National Convention’s Platform Standing Committee and has attended all but one Democratic National Convention as a Delegate, Alternate or Standing Committee Member since 1992.
Jeemin Cha, Data Policy Coordinator | Coalition for Asian American Children and Families (CACF)
Jeemin Cha (he/him) is the Data Policy Coordinator at CACF. As Data Policy Coordinator, he co-leads the Invisible No More Campaign for Data Equity (INM) and represents AAPI New Yorkers in data collected by city and state agencies. From his role, he works to rectify the systemic erasure of AAPI New Yorkers in data collected by city and state agencies and ensure that AAPIs and our needs are accurately and properly included in disaggregated data. Before arriving at CACF, he worked as an organizer and policy analyst at various immigration nonprofits in NYC, Washington D.C., and Chicago focused on advocacy for increased visibility of AAPI undocumented immigrants and fought for the passage of a comprehensive immigration reform bill in Congress. Jeemin graduated from Baruch College – CUNY with a major in Public Affairs. He also completed his PPIA Fellowship at Princeton School of Public and International Affairs. Jeemin was raised in Hong Kong and China. He is currently based in Queens, NY.
Francesca Perrone, Senior Policy Analyst | Hispanic Federation
Francesca Perrone is a Senior Policy Analyst for Hispanic Federation, working to elevate the needs of the Latino community through policy and advocacy. She is passionate about public health equity, and seeks to alleviate disparities through practices that are community centered.
Prior to working with the Hispanic Federation, Francesca spent two years as a bilingual COVID-19 Contact Tracer for NYC Health and Hospitals, providing support to New Yorkers during the Pandemic. She got her start in health policy at NYC Council Member Ben Kallos’ Office, where she supported the Legislative Director in identifying critical concerns in the community, and crafting solutions to address them. Francesca holds a BA in Political Science from Barnard College of Columbia University, and received her Master’s in Public Health from NYU. She is currently enrolled as a part-time evening student at New York Law School, and seeks to bring a legal perspective to her advocacy work. Recently, she was appointed to the New York City Commission on Racial Equity.
Rana Abdelhamid, Founder and Executive Director | Malikah
Rana Abdelhamid is the child of Egyptian immigrants, a community organizer and 1st Degree Black Belt from Queens, NY. At age 16, after experiencing a hate based attack, Rana founded Malikah, an antiviolence organization addressing hate and gender based violence through self-defense, healing, financial literacy and organizing education. Since then she has taught over 650 self-defense classes and healing workshops, reaching thousands of women in 32 countries across the globe. Today she serves as the Executive Director of Malikah as an Echoing Green fellow.
Taina Wagnac, Senior Manager of State and Local Policy | New York Immigration Coalition
Taina B. Wagnac is the Senior Manager of State & Local Policy at the New York Immigration Coalition (NYIC), a state-wide and member-led coalition of immigrant and refugee organizations. Born and raised in Port-au-Prince, Haiti, Taina possesses more than 10 years of expertise in policy analysis, legislative drafting and research. Currently, Taina oversees the NYIC’s policy work within the Building Political Power & Guaranteed Civil Rights program area, to advance and develop legislation that empower immigrant communities in all the regions of New York State. Taina leads the NYIC’s work in advocating data disaggregation policies for Middle Eastern, and North African, and African Caribbean communities in New York state.
Meeting the Promise of the Revised Federal Race and Ethnicity Data Collection Standards
Moderator: Andrea Senteno, Regional Counsel | Mexican American Legal Defense and Educational Fund (MALDEF)
Andrea Senteno is the Regional Counsel of MALDEF’s Washington, DC office, where she oversees MALDEF’s legislative and regulatory work in Washington and litigation work covering the U.S. Court of Appeals for the District of Columbia, Fourth and Eleventh Circuits. She was part of the litigation team for LUPE v. Ross, a successful challenge to the addition of the citizenship question to the decennial Census, and LUPE v. Ross II, a challenge to Donald Trump’s attempt to create citizenship redistricting data and exclude undocumented immigrants from Congressional apportionment totals. She also represented defendant-intervenors to oppose Alabama’s suit to exclude undocumented immigrants from congressional apportionment in the case Alabama v. Department of Commerce. She is responsible for managing MALDEF’s federal policy work, and has worked on efforts to pass a legislative fix to the Voting Rights Act of 1965 following the Supreme Court’s decision in Shelby County v. Holder. She has had a long commitment to public interest work, as well as social and racial justice issues. Prior to attending law school, Andrea advocated for government transparency and accountability in New York, focusing on election reform issues. She received her J.D. from American University Washington College of Law and B.A. from Pitzer College.
Karen Battle, Chief, Population Division | U.S. Census Bureau
Since 2014, Karen Battle has served as the Chief of the Population Division at the U.S. Census Bureau. In that role, she oversees the research, development, analysis and dissemination of statistics related to the population and demographic characteristics of the United States and selected countries around the world. This includes managing the development of annual population estimates for the United States, states, and counties by age, sex, race and Hispanic origin, as well as research to improve the measurement of race, ethnicity and other special population topics.
Ms. Battle began her career at the Census Bureau in 1998 in the Special Population Statistics Area within the Population Division where she worked on analyzing data and developing products that focused on race and ethnicity. Since then, much of Ms. Battle’s career has been spent leading the production and analysis of statistics from decennial censuses and household surveys on the demographic characteristics of special populations in the United States.
Spotlight on U.S. Census Bureau Research to Inform Discussions for Improving Federal Race and Ethnicity Data Standards – U.S. Census Bureau Subject Matter Experts
Nicholas Jones, Director, Race/Ethnicity Research & Outreach | U.S. Census Bureau
Nicholas Jones is the Director for Race/Ethnicity Research and Outreach in the U.S. Census Bureau’s Population Division. He joined the Census Bureau in 2000 as an analyst in the Racial Statistics Branch, and served as Chief of Racial Statistics from 2007 to 2014. His research over the past couple decades has helped shed light on race reporting patterns and the demographic characteristics of Multiracial children and interracial families, the size and distribution of racial and ethnic groups, and the racial/ethnic diversity of the United States population.
Nicholas led the Census Bureau’s extensive research and outreach to explore and discuss alternative approaches for improving data on race and ethnicity and to prepare for analyzing and communicating the results of the 2020 Census. He has presented at numerous academic conferences and professional meetings, and discussed race and ethnicity research and trends with a wide variety of media outlets and national and local organizations. Nicholas earned three Department of Commerce Bronze Medal Awards for the review and analysis of 2000 and 2010 race data and leadership in Tribal Consultations with American Indians and Alaska Natives.
Nicholas received a Master’s Degree in Sociology from the University of Michigan and a Bachelor’s Degree in Sociology and Anthropology from St. Mary’s College of Maryland.
Rachel Marks, Chief, Racial Statistics Branch | U.S. Census Bureau
Rachel Marks is chief of the Racial Statistics Branch in the Census Bureau’s Population Division. She leads a research team that analyzes data on race and ethnicity from the 2020 Census, 2020 Island Areas Census, American Community Survey, and the Current Population Survey. She advises and guides research focusing on the reporting patterns of racial and ethnic groups in the United States, Puerto Rico, and other Island Areas.
Rachel has conducted extensive outreach, presentations, and workshops with various stakeholder groups throughout her career and was a lead researcher for the 2015 National Content Test, which examined alternative ways to collect data on race and ethnicity. She is a leading expert on the Middle Eastern and North African population in the United States – and has authored many reports and presentations.
Rachel joined the Census Bureau in 2007 as a survey statistician in the Decennial Management Division’s Puerto Rico, Island Areas, and Overseas Enumeration Branch. She has a master’s degree in sociology from the University of New Hampshire and a bachelor’s degree in sociology from Shippensburg University in Pennsylvania. She also completed a master’s certificate in project management at George Washington University.
Data Disaggregation: A View from the States
Moderator: Maria Filippelli, Member | 2030 Census Advisory Committee; Board Member | TechShift Alliance
Maria Filippelli is a data, technology, and policy professional. Maria has worked as a nonprofit data director, public interest technology census fellow, and regional planner. Maria’s work emphasizes the need for data stewardship, tech products, and policy to work in conjunction to ensure representation, equity, and responsible implementation.
Scott Powell, Chief Data Officer | State of Michigan
Scott Powell is the Chief Data Officer for the State of Michigan and director of the Michigan Center for Data and Analytics. Scott and his team lead state efforts to enhance and promote evidence-based decision making across state government. He has over ten years of experience in turning data into actionable information, specializing in advanced analytics, program evaluation, and administrative data systems. Before taking on his current role, Scott served as the center’s director of research for over five years. Prior to joining the State of Michigan, he held appointments at the Heldrich Center for Workforce Development at Rutgers University, where he developed multiple research projects for the State of New Jersey, as well as the University of Tennessee. Scott is a native of the Flint, Michigan area and holds degrees from Michigan State University and Ohio State University.
Jason Rosensweig, Director of Legislative Affairs and Policy | Illinois Department of Human Rights
Jason Rosensweig serves as the Director of Legislative Affairs and Policy at the Illinois Department of Human Rights, with a background in academia, policy, advocacy, community- and coalition-building, and public service. Jason’s passion is in bringing together different groups and people to build a strong social fabric, communities, and institutions. Jason has also served as Commissioner on the Illinois Commission on Discrimination and Hate Crimes since its establishment in 2021, and is currently Adjunct Professor of Government for Northwestern University, teaching courses in government and history for the Northwestern Prison Education Project inside Illinois’ Stateville prison. Previously, Jason was Director of Chicago for the Shalom Hartman Institute, a think tank, and Assistant Director for Advocacy and International Affairs at the American Jewish Committee (AJC). Prior to his career in public service, Jason’s research and teaching focused on pluralism, community, and how we can best get along in a shared, free society. He taught at American University, the University of Chicago (where he earned his PhD) and Stanford (where he earned his BA).
Implementing New Federal Data Collection Standards: Challenges and Next Steps
Moderator: Meeta Anand, Senior Program Director for Census & Data Equity | The Leadership Conference on Civil and Human Rights & The Leadership Conference Education Fund
Meeta Anand most recently served as census consultant to The Leadership Conference Education Fund. Prior to this role, she served as New York Immigration Coalition’s Census 2020 Senior Fellow where she spearheaded the organization’s efforts to ensure a fair and accurate count of New Yorkers, particularly immigrants, in the 2020 Census. In this capacity she also served as the facilitator and convenor of New York Counts 2020, the statewide coalition of CBOs engaged in the 2020 Census. She also recently served as Board Chair for Sakhi for South Asian Women, an organization dedicated to addressing gender-based violence in the South Asian community of NYC. Anand spent over 10 years working at the law firm White & Case, where she was an associate in the project and asset finance group and headed business development for the same group. Prior to that, she clerked at the Court of International Trade, interned at the Division of Appeals and Opinions at the New York State Office of the Attorney General, worked as a commercial banker at Banco Santander, interned at the Bureau of Human Rights at the State Department, and assisted research in economics at the Federal Reserve Bank of Boston. She received a J.D. from Harvard Law School, an M.A from the The Fletcher School of Law and Diplomacy at Tufts University, and a B.A. from Tufts University in Political Science and Economics, summa cum laude, Phi Beta Kappa.
Karen Battle, Chief, Population Division | U.S. Census Bureau
See above for bio
Nicholas Jones, Director, Race/Ethnicity Research & Outreach | U.S. Census Bureau
See above for bio
Rachel Marks, Chief, Racial Statistics Branch | U.S. Census Bureau
See above for bio
Scott Powell, Chief Data Officer | State of Michigan
See above for bio
Jason Rosensweig, Director of Legislative Affairs and Policy | Illinois Department of Human Rights
See above for bio
AFTERNOON SESSIONS
Keynote Address
Jer Thorp – Author of Living in Data, former Library of Congress Innovator in Residence, Former New York Times Data Artist–in–Residence
Jer Thorp is an artist, writer and teacher living in New York City. He is best known for designing the algorithm to place the nearly 3,000 names on the 9/11 Memorial in Manhattan. Jer was the New York Times’ first Data Artist in Residence, is a National Geographic Explorer, and in 2017 and 2018 served as the Innovator in Residence at the Library of Congress. Jer is one of the world’s foremost data artists, and is a leading voice for the ethical use of big data.
Jer’s data-inspired artwork has been shown around the world, including most recently in New York’s Times Square, at the Museum of Modern Art in Manhattan, at the Ars Electronica Center in Austria, and at the National Seoul Museum in Korea. His work has also appeared in a wide variety of publications, including Scientific American, The New Yorker, Popular Science, Fast Company, Business Week, Popular Science, Discover, WIRED and The Harvard Business Review.
Jer’s talks on TED.com have been watched by more than a half-million people. He is a frequent speaker at high profile events such as PopTech, and The Aspen Ideas Festival. Recently, he has spoken about his work at MIT’s Media Lab, The American Museum of Natural History, MoMA, and NASA’s Jet Propulsion Lab (JPL) in Pasadena.
Jer is a Rockefeller Foundation Fellow, and an alumnus of the World Economic Foundation’s Global Agenda Council on Design and Innovation. He is an adjunct Professor in New York University’s renowned Interactive Telecommunications Program (ITP), and is the Co-Founder of The Office for Creative Research. In 2015, Canadian Geographic named Jer one of Canada’s Greatest Explorers.
Jer’s book ‘Living in Data’ was published by Farrar, Straus and Giroux in the spring of 2020.
Data Disaggregation and Artificial Intelligence
Moderator: Alejandra Montoya-Boyer (she/her/ella), Senior Director | Center for Civil Rights & Technology
Alejandra Montoya-Boyer (she, her, ella) is the Senior Director of the Center for Civil Rights and Technology at the Leadership Conference on Civil and Human Rights, where she focuses on research, policy solutions, and advocacy that responds to the growing opportunities and challenges from AI and emerging technologies and their impact on marginalized communities.
Prior to the Leadership Conference, Alejandra was the Director of Policy at Prosperity Now where she led the development and advocacy of policies that work to close the racial wealth gap by creating a more equitable tax system, putting Black and Brown people on a path to homeownership, and ensuring economic well-being for workers and families. She has also worked at the National Association of Counties (NACo), the Bill & Melinda Gates Foundation, the Joint Center for Political and Economic Studies, and the Office of Ben Ray Luján (NM-03). She has a diverse background in policy, political campaigning, grassroots advocacy, and program management with deep content expertise in workforce development, tech policy, economic justice, and racial equity.
Alejandra calls Albuquerque, New Mexico home, and is a fan of the best green chile, hot air balloons, and hikes up the Sandia Mountains.
Miranda Bogen, Director, AI Governance Lab | Center for Democracy & Technology
Miranda Bogen is the founding Director of CDT’s AI Governance Lab, where she works to develop and promote adoption of robust, technically-informed solutions for the effective regulation and governance of AI systems.
An AI policy expert and responsible AI practitioner, Miranda has led advocacy and applied work around AI accountability across both industry and civil society. She most recently guided strategy and implementation of responsible AI practices at Meta, including driving large-scale efforts to measure and mitigate bias in AI-powered products and building out company-wide governance practices. Miranda previously worked as senior policy analyst at Upturn, where she conducted foundational research at the intersection of machine learning and civil rights, and served as co-chair of the Fairness, Transparency, and Accountability Working Group at the Partnership on AI.
Miranda has co-authored widely cited research, including empirically demonstrating the potential for discrimination in personalized advertising systems and illuminating the role artificial intelligence plays in the hiring process, and has helped to develop technical contributions including AI benchmarks to measure bias and robustness, privacy-preserving methods to measure racial disparities in AI systems, and reinforcement-learning driven interventions to advance equitable outcomes in products that mediate access to economic opportunity. Miranda’s writing, analysis, and work has been featured in media including the Harvard Business Review, NPR, The Atlantic, Wired, Last Week Tonight, and more.
Miranda holds a master’s degree from The Fletcher School at Tufts University with a focus on international technology policy, and graduated summa cum laude and Phi Beta Kappa from UCLA with degrees in Political Science and Middle Eastern & North African Studies.
Caitriona Fitzgerald, Deputy Director | Electronic Privacy Information Center (EPIC)
Caitriona Fitzgerald is Deputy Director at the Electronic Privacy Information Center (EPIC). Caitriona leads the development of EPIC’s policy agenda, providing expertise to advance strong privacy, open government, and algorithmic fairness and accountability laws at both the state and federal level. She has testified before Congress and state legislatures. Prior to joining EPIC, Caitriona served as Chief of Staff to Massachusetts State Senator Barry Finegold, where she focused on election law reforms. A member of the Massachusetts bar, Caitriona graduated from Northeastern University School of Law (J.D.) and the State University of New York at Geneseo (B.A., Computer Science). She was recently selected as a 2023 Harvard Law School Wasserstein Fellow.
Claudia Ruiz, Senior Civil Rights Analyst | UnidosUS
Claudia Ruiz is a Senior Civil Rights Analyst at UnidosUS, formerly NCLR (National Council of La Raza), the nation’s largest Latino civil rights and advocacy organization. Working with cross-cutting civil rights issues ranging from voting rights to policing reform to digital equity & tech accountability, Claudia advocates for policy reforms and civil rights protections that promote equity and inclusion for the Latino community.
Data Visualization Workshop – Avoiding Territorial Stigmatization: Data Literacy for Data Stewards
Robert Gradeck – Project Director, Western Pennsylvania Regional Data Center at the University of Pittsburgh Center for Social and Urban Research
Robert Gradeck has spent his career helping people find and use civic information. He manages and co-founded the Western Pennsylvania Regional Data Center (WPRDC) at the University of Pittsburgh. The WPRDC is an inclusive open data partnership between the University, Allegheny County, and the City of Pittsburgh. The WPRDC helps to inform many community initiatives in the areas of health, housing, environmental protection, transportation, and social justice. He is a member of the Civic Switchboard project, which helps libraries and library workers become participants in civic data initiatives, co-leads of the Black Equity Coalition’s Data Justice Working Group, participates in the National Neighborhood Indicators Partnership, is a fellow in the AISP Equity in Practice Learning Community, and finished third in the 2021 Pennsylvania Farm Show butter sculpture competition
Messaging and Media Training 101
Sofía Costas, Senior Manager, Strategic Communications | The Leadership Conference Education Fund
Sofia Costas is a Senior Communications Manager at The Leadership Conference working on messaging and strategy to protect and promote the civil and human rights of all persons in the United States. She leads our voting rights work and the development and implementation of strategies to maximize the communications capacity of the coalition. Before joining The Leadership Conference, Sofia worked for GQR Research helping progressive candidates, organizations, and causes around the world with strategic communications and messaging. Sofia was born in Bolivia and is a graduate of the University of Florida and the George Washington University.
Data in Action Part 1: Building and Leveraging Data Ecosystems
Moderator: Laura E. Durso, Ph.D. | Founder, Harmonic Strategies
Dr. Laura E. Durso (she/her) is a nationally recognized expert and researcher influencing federal, state, and local policy with particular emphasis on the advancement of LGBTQ health and civil rights. She is the founder of Harmonic Strategies, a DC-based consulting practice working with clients at the intersection of research and policy. Previously, Dr. Durso was the Chief of Staff at the Office for Civil Rights at the U.S. Department of Health and Human Services where she helped lead the civil rights and health information privacy agenda under the Biden-Harris Administration. Prior to public service, she was the Executive Director and Chief Learning Officer of the Whitman-Walker Institute, where she led the strategic integration of research, policy, and education for the Whitman-Walker community health enterprise, and was the Vice President of the LGBTQ Research and Communications Project at the Center for American Progress. Dr. Durso’s research and advocacy leadership has secured protections for LGBTQ people across a range of areas of life, including under the Affordable Care Act and Fair Housing Act, and her work is cited in briefs to the U.S. Supreme Court. A native New Yorker, Dr. Durso holds a BA in psychology from Harvard College and master’s and doctoral degrees in clinical psychology from the University of Hawai’i at Manoa.
Lloyd Feng, Data Policy Coordinator | Coalition for Asian American Children and Families
Lloyd Feng (he/him) joined CACF in August 2021. In his current role as Data Policy Coordinator, Lloyd co-leads the Invisible No More Campaign (INM), focusing on effective policy implementation and oversight of ethnicity-based data disaggregation at NYC, NYS, and federal agencies so that Asian and NHPI populations and all New Yorkers can be fully represented in government demographic data collection.
Prior to CACF, Lloyd served as a Program Associate at the Committee of 100, uplifting the needs of Chinese Americans in the U.S. policy sphere as well as in U.S.-China relations. Lloyd is a native New Yorker, born and raised in Washington Heights and Upper Manhattan who now calls Williamsburg, Brooklyn home. He serves as Chair of the Committee on Public Safety & Human Services of Brooklyn Community Board 1. Lloyd is a graduate of Princeton University with a Bachelor’s degree in Art & Archaeology and a Certificate in East Asian Studies.
Sara Ismail, State Policy Manager | ACCESS/National Network for Arab American Communities
Sara is State Policy Manager with the National Network for Arab American Communities (NNAAC) which is an institution of ACCESS. Sara’s work is centered on Middle Eastern and North African (MENA) inclusion at the state and local level, addressing data inequities and racial disparities for MENA communities. All the work she does is centered on highlighting political and social inequities, racial disparities, and understanding the consequences of organizational effectiveness on mental health institutes providing services to minority communities. Sara is a doctoral candidate at Wayne State University, where she also received her Master of Arts in Dispute Resolution.
Emily McRae – Center for Health Innovation
Emily McRae (she/they) is the Director for the Information and Special Projects Department with the Center for Health Innovation Public Health Institute. With a background in Geographic Information Systems (GIS) and spatial data systems, Emily loves the intersection of art and science inherent with mapping. She is passionate about data sovereignty, equitable and representative data, and data for public health. Emily is grateful for the opportunity to work with and learn from so many who support a diversity of health outcomes across New Mexico.
Aaron Yore–VanOosterhout (he/him/his), Research Manager | Dorothy A. Johnson Center for Philanthropy
Aaron is a research manager at the Dorothy A. Johnson Center for Philanthropy at Grand Valley State University (GVSU), in Grand Rapids, Michigan. In this role, he designs and carries out community-based research to help nonprofits, schools, and other organizations better serve people. Since joining the Johnson Center in 2017, he has been honored to work with organizations providing housing to people experiencing homelessness, educators and administrators at K–12 schools, and universities providing postsecondary education in prison, among many others.
Aaron also serves as the co-director of the Bellamy Creek Program, which offers a bachelor’s degree to GVSU students incarcerated at the Bellamy Creek Correctional Facility in Ionia, Michigan. In this capacity, he represents GVSU on the Michigan Consortium for Higher Education in Prison, an advisory board for the Michigan Department of Corrections.
Data in Action Part 2: Data Disaggregation and Civic Engagement
Moderator: Esteban Camarena, Field Manager, Census & Data Equity | The Leadership Conference on Civil and Human Rights & The Leadership Conference Education Fund
Esteban Camarena is the Field Manager for Census and Data Equity at The Leadership Conference for Civil and Human Rights. In this role, he helps manage the States Count Action Network – a broad coalition of organizations advocating for the census and ACS. He also co-manages the Data Disaggregation Action Network, which works to advance federal and state policies as they relate to data disaggregation by race and ethnicity. He has over a decade of community organizing experience working on issue-based campaigns, such as healthcare enrollment, reproductive health rights, voter registration, and GOTC during the 2020 Census. Esteban is a first-generation, Mexican American from Tucson, Arizona. He has a Master of Public Administration and a Master of Arts in Latin American Studies and served as a Fulbright scholar in Brazil.
Cynthia Romo, Associate Director of Civic Engagement | AltaMed
As the Associate Director of Civic Engagement at AltaMed, Cynthia Romo is responsible for implementing AltaMed’s Civic Engagement mission and guiding principles. Working closely with department leadership to set the strategic direction for AltaMed’s civic engagement strategy, ensuring alignment with organizational goals and priorities. Cynthia leads a dedicated team in implementing the Integrated Civic Engagement Model (ICEM) across all clinic sites, fostering continuous communication with medical and clinic leadership. She develops civic engagement curricula for internal stakeholders, including providers, family medicine residents, nurses, and new hires, ensuring comprehensive internal engagement. Cynthia is a passionate advocate for community health equity. As an immigrant, Latina, and mother of two dedicated activists, she brings a deep personal commitment to her role as Associate Director of Civic Engagement at AltaMed. Her work focuses on empowering communities and advancing health equity through strategic initiatives and partnerships.
Mar Velez, Director of Policy | Latino Coalition for a Healthy California
Mar Velez the Policy Director for the Latino Coalition for a Healthy California. In her role, Mar leads LCHC’s policy agenda to address the social determinants of health, ensure healthcare access for California’s Latinx and vulnerable populations, and incorporate community voice in all policy initiatives.
Mar’s experience in advocacy, research, and in local, state, and federal government provides her with unique insight to advance equity, justice, and accountability for public good. Previously, Mar worked for the City of Oakland and later became a Congressional Aide to Congresswoman Barbara Lee where she oversaw the criminal justice, Latinx, and women’s rights district issues portfolio. Additionally, she has worked with grassroots leaders and organizations, particularly in the criminal and youth justice field, to successfully pass and promote public safety measures at the state and local levels for positive health and life outcomes for youth.
Mar holds a dual Master’s degree in Public Health and City Planning from the University of California, Berkeley. As a daughter to immigrant parents from Mexico who has had to overcome systemic barriers, it is Mar’s passion to undo cycles of poverty to achieve positive and equitable life and health outcomes for her community.
Rosa Flores (she/her/ella), Director of Programs | Latino Coalition for a Healthy California
Rosa Flores is the Director of Programs with the Latino Coalition for a Healthy California (LCHC). She oversees the strategy for community engagement with Latine and Indigenous communities. With roots as a community organizer, she brings years of experience to the LCHC team on community mobilization on issues relating to health equity, migrant rights, education, climate action, and youth and women’s leadership development. In her previous role, she led multiple health programs that elevated farmworkers’ access to comprehensive healthcare services and enacted community-led policy, systems, and environmental changes. Rosa’s experience also includes leading and training teams of Community Health Workers, also known as Promotorxs, on community-based health education and participatory research practices.
Rosa is the newly elected co-director of the New Leaders Council Sacramento and a board member for My Sister’s House, an organization serving AAPI survivors of domestic violence and sexual assault. Rosa earned a Political Science degree and a Spanish minor from San Diego State University. In her free time, she enjoys practicing yoga and spending as much time as possible in, near, and around water, specifically, exploring Tahoe and the San Diego coastline.
Dr. James Sadler, Director of Research | Baltimore’s Promise
Dr. James Sadler is the Director of Research at Baltimore’s Promise, a collective impact non-profit that harnesses the power of data and collaboration to achieve better outcomes for Baltimore’s youth and their families. James oversees the research agenda of the Baltimore City Youth Data Hub, an integrated data system founded by Baltimore’s Promise, the City of Baltimore, and Baltimore City Schools that was established by state legislation in 2022. James holds a PhD in Education Policy from the University of North Carolina at Chapel Hill, and a Master of Science in Education from the University of Pennsylvania that he earned while teaching in a Philadelphia high school. Now living and working in Baltimore, James is committed to using his skills to help empower institutions and communities in the city to improve outcomes for youth from cradle to career.
Dr. Jeanine Abrams McLean, President | Fair Count
Dr. Jeanine Abrams McLean is the President at Fair Count, a nonprofit, nonpartisan organization, founded by Stacey Abrams. Fair Count’s goal is to ensure that every person in Georgia and the nation is counted for a fair and accurate census and to build pathways to continued civic participation, including voting and redistricting. Jeanine is a highly skilled researcher with over 20 years of experience conducting population-based studies and projects. She led the creation of statistically-relevant census undercount maps of all 50 states with a focus on Black and Latinx communities and advocated for community-driven solutions through the pairing of researchers and organizers. Jeanine was recently selected for the Keseb Democracy Fellowship program, which focuses on cross-country learning with democracy entrepreneurs from the United States, Brazil, and South Africa.
Closing Keynote
Lurie Daniel Favors, Executive Director | Center for Law and Social Justice
Lurie Daniel Favors, Esq. serves as Executive Director at the Center for Law and Social Justice. She is an activist and attorney with a long-standing commitment to racial and social justice. Ms. Daniel Favors earned her J.D. from New York University, where she was a Root-Tilden-Kern public interest scholar. She graduated from Pennsylvania State University with a BA in African and African American Studies, with a Minor in Spanish Language.
Ms. Daniel Favors started her legal career as an attorney in the New York offices of Proskauer Rose LLP and Manatt Phelps and Phillips, LLP. She also served as a federal court law clerk in the chambers of the Honorable Sterling Johnson, Jr., in the U.S. District Court for the Eastern District of New York. She later founded Daniel Favors Law PLLC, a law firm that focused on economic and racial justice.
Before completing law school, Ms. Daniel Favors co-founded Sankofa Community Empowerment, Inc., a non-profit organization designed to educate and empower communities of African descent. She later co-founded Breaking the Cycle Consulting Services LLC, which specializes in creating comprehensive professional development for educators, youth education programs and family engagement workshops designed to address the crisis in urban education through the use of culturally responsive teaching. Ms. Daniel Favors hosts the Lurie Daniel Favors Show on Sirius XM’s Urban View Network.
Ms. Daniel Favors is a contributing author to The Birth of a Nation: Nat Turner and the Making of a Movement. She has also penned Afro State of Mind: Memories of a Nappy Headed Black Girl, a coming of age story about a Black girl fighting to find her place in a world where her hair texture and skin color did not fit the accepted beauty standard. Through an examination of the history of African textured hair and racism, Ms. Daniel Favors identifies Black hair, identity, skin color and self-esteem as areas that are ripe with potential for personal and political power.
Ms. Daniel Favors adheres to the West African principle of sankofa and believes one must use the past in order to understand the present and build for a brighter future. She is a proud member of Delta Sigma Theta Sorority, Incorporated. You can follow her on Twitter; Instagram; or Facebook.
Disaggregation Nation: A Landscape Review of State Race & Ethnicity Data Collection (July 2024 Mid-Year Update)
This report provides 2024 updates to laws and pending legislation with a forward from Dr. Neda Maghbouleh, Member of the 2030 Census Advisory Committee (CAC) and Associate Professor of Sociology at University of British Columbia.
Disaggregation Nation: A Landscape Review of State Race & Ethnicity Data Collection
This report examines laws and pending legislation in 50 states and the District of Columbia to identify states that require disaggregation of race or ethnicity data beyond federal standards.
Your Community Counts | Organizing Toolkit for Data Equity
An existing resource that can be used again during the Media Training breakout session.
Baltimore City Youth Data Scorecard
This resource from Baltimore’s Promise allows community stakeholders to track the best available data on the wellbeing of Baltimore’s children and youth across multiple outcomes of interest.
Community Health Workers and Promotores: Investing in Change Agents for a Healthy California
This report from the Latino Coalition for a Healthy California reviews their model of community engagement through partnerships with Community health workers and Promotores de Salud.
Fair Districts
These redistricting tools and resources from Fair Count include a public-facing online mapping program that lets anyone compare official maps, community maps, and existing maps to each other in real time.
Invisible in the Data: The Lack of a Middle Eastern and North African (MENA) Race & Ethnicity Category Obscures Disparities
This report from Malikah and the New York Immigration Coalition is a guide for community leaders and advocates working to advance equity for Middle Eastern and North African (MENA) communities.
Native Land Digital
This data visualization and interactive – shared by Jer Thorp during his afternoon keynote – visualizes Indigenous history on land. You can even use it to make your own maps!
Navigating Demographic Measurement for Fairness and Equity
This report from the Center on Technology & Democracy reviews and makes recommendations for entities conducting fairness and equity assessments of artificial intelligence systems.
New Mexico Community Data Collaborative
The Center for Health Innovation presented their data ecosystem, which aggregates data sources from across New Mexico, allowing users to find state-level data and explore by multiple populations of interest.
Outsourced & Automated: How AI Companies Have Taken Over Government Decision-Making
This report from Electronic Privacy Information Center investigates the ways that state agencies procure AI systems, the AI systems that are embedded in state government, and the major companies behind many of the most common government AI systems.
Western Pennsylvania Regional Data Center
This site hosts open data from local sources through a partnership between the University of Pittsburgh, Allegheny County, and the City of Pittsburgh. The mission of the Western Pennsylvania Regional is to “make local data publicly accessible, machine-readable, and free to use, modify, and share.” They also host regular workshops to increase data literacy.
Bonus Book Recommendation: The Next American Revolution: Sustainable Activism for the Twenty-First Century by Grace Lee Boggs.
Disaggregation Nation!
2023 Data Equity Summit
Date: July 10, 2024
Hosted by: Data Disaggregation Action Network | The Leadership Conference Education Fund
Who counts depends on who is counted.
Thank you for joining us at Disaggregation Nation! A Data Equity Summit! We were so grateful to spend the day in community with our partners working to advance data disaggregation and equity, and we really appreciated your thoughtful engagement and questions. We hope that the panel discussions, resources shared, and opportunities to connect with others engaged in this work brought fresh insights and inspiration to your own efforts to advance data equity
Implementing Data Disaggregation Laws and Regulations
Part 1: Navigating and Improving State Data Systems
- AJ Scheitler, Ed.D., Director of Development, Engagement and Strategic Planning at the UCLA Center for Health Policy Research
- Susan H. Babey, Ph.D., Senior Research Scientist at the UCLA Center for Health Policy Research
- Tara Becker, Senior Research Associate, UCLA Center for Health Policy Research
- Sharmin Hossain, Chief Data Officer, Maryland Department of Human Services
Part 2: Challenges, Solutions, and Community Roles
- Thu Quach, Ph.D., President, Asian Health Services
- Julia Liou, Chief Executive Officer, Asian Health Services
- Caroline Sanders, Senior Policy Director, California Pan-Ethnic Health Network
- Karla Thomas, Co-Executive Director, Empowering Pacific Islander Communities (EPIC)
- Andrew C. Lee, California Policy Manager, Southeast Asia Resource Action Center (SEARAC)
Race and Ethnicity Data Messaging Framework and Strategy
Improving Race and Ethnicity Data Collection Messaging Framework and Strategy
- Cassidy Schwartz, Account Director, CLYDE
- Austin Adams, Account Director, CLYDE
- Jake Gómez, Public Affairs Specialist, CLYDE
New Jersey Alliance for Immigrant Justice
- Amy Torres, Executive Director, New Jersey Alliance for Immigrant Justice
Administrative Advocacy
Administrative Advocacy and Data Disaggregation Policy Change: Opportunities and Strategies to Enhance Data Compilation and Quality
- Rosalind Deborah Gold, Chief Public Policy Officer, NALEO Educational Fund
Invisible No More: AAPI Data Equity and Disaggregation
- Anita Gundanna, Co-Executive Director, Coalition for Asian American Children and Families (CACF)
Administrative Advocacy for Data Disaggregation – Connecticut’s approach
- Michelle Riordan-Nold, Executive Director, CT Data Collaborative
- Manisha Srivastava, Policy Coordinator and Economist in the Data & Policy Analytics unit at the Connecticut Office of Policy & Management (OPM)
Data Privacy Considerations
Striking a balance between data disaggregation and data privacy – technical considerations
- Claire McKay Bowen, Principal Research Associate and Statistical Methods Group Lead at the Urban Institute
Demographic Data Collection & Privacy Considerations
- Mara Youdelman, Managing Director for Federal Advocacy, National Health Law Program
Building Data Literacy for CBOs Serving Communities of Color
National Equity Atlas Fellowship
- Selena Tan, Senior Associate, PolicyLink
Advancing Data Literacy and Availability for CBOs Serving Communities of Color
- Marjorie A. Innocent, Ph.D., Director of Learning and Impact, NAACP
Implementing Data Disaggregation Laws and Regulations
Part 1: Navigating and Improving State Data Systems
AJ Scheitler, Ed.D., Director of Development, Engagement and Strategic Planning at the UCLA Center for Health Policy Research
AJ Scheitler is the Director of Development, Engagement and Strategic Planning at the UCLA Center for Health Policy Research. She leads the Center’s development activities and fosters funder relationships. Scheitler also manages several large programs at the Center, including the Data Equity Center and the National Network of Health Surveys, a national collaboration of population health survey leaders and data users promoting the improved collection and dissemination of critical local and state health data. Additionally, she conducts research projects to provide evidence for policy making in areas of patient experience and intersections of health and education. Prior to joining the Center, Scheitler conducted federal resource development activities for a number of institutions of higher education and lobbied Congress and the federal government for the interests of education organizations and post-secondary schools. She has experience at the state government level as well, having served as the Chief of Staff for the Florida Senate Minority Leader.
Susan H. Babey, Ph.D., Senior Research Scientist at the UCLA Center for Health Policy Research
Susan H. Babey, Ph.D., is a co-director of the Chronic Disease Research Program and a senior research scientist at the UCLA Center for Health Policy Research as well as an associate researcher in the Department of Health Policy and Management, UCLA Fielding School of Public Health. Her research focuses primarily on the prevention of chronic health conditions. She has examined the social and environmental determinants of health, health disparities, and access to care for vulnerable populations. Babey is currently leading research examining the links between health and civic engagement; access to care for physically, socially, and financially vulnerable populations, including sexual minorities, immigrants, and those who rely on public programs for food and medical care; and is also engaged in research involving disaggregating race/ethnicity data. Other recent projects include a qualitative study identifying barriers to care experienced by those with metastatic breast cancer, an evaluation of place-based obesity prevention strategies for the Los Angeles County Department of Public Health, and research that produced state and county-level modeled estimates of the prevalence of prediabetes in California.
Tara Becker, Senior Research Associate, UCLA Center for Health Policy Research
Tara Becker is a senior research associate at the UCLA Center for Health Policy Research, where she works with the California Health Interview Survey, the Data Equity Center, and the Native Hawaiian and Pacific Islander Data Policy Lab. Her research focuses on quantitative methodologies, data quality, and measurement with an emphasis on understanding the disproportionate impact that data collection methodologies have on the measurement of small and marginalized populations. Becker previously worked as a senior program officer for the Committee on National Statistics at the National Academies of Sciences, Engineering, and Medicine, where she managed the production of consensus studies on measuring sex, gender identity, and sexual orientation and understanding the aging workforce and employment at older ages. Prior to joining the Center, Becker worked as a UCLA/RAND postdoctoral fellow in the Department of Health Policy and Management at UCLA, where she trained in U.S. health policy. She also previously worked as a biostatistician at the University of Wisconsin–Madison’s Department of Biostatistics and Medical Informatics, where she provided statistical consultation, study design, data analysis, and grant-writing support services to medical and public health researchers. Becker received her Ph.D. in sociology, an M.S. in statistics, and a B.S. in mathematics and sociology from the University of Wisconsin–Madison.
Sharmin Hossain, Ph.D., Chief Data Officer for the Maryland Department of Human Services (DHS)
Sharmin Hossain, Ph.D. is an Epidemiologist and the Chief Data Officer for the Maryland Department of Human Services (DHS). At DHS, her work involves overseeing data operations at DHS, understanding needs (central and local DHS offices) and providing advanced data analytic support to the second largest state agency in Maryland. Prior to this role with DHS, Sharmin was the Director of Data Analytics and Research at the Center for Applied Analytics in Maryland Total Human-services Integrated NetworK (MDTHINK), a groundbreaking and first of its kind shared technology platform that will transform the state’s ability to deliver vital human services to Marylanders. Sharmin also serves as a special volunteer to the National Institute on Aging (NIA/NIH) working with a health disparities research group called, Healthy Aging in Neighborhoods of Diversity across the Life Span study or HANDLS. She continued her exploration of persistent health disparities in community-dwelling older adults of Baltimore, Maryland. She is also part of two research collaborations at the intersection of health disparities, nutrition, cognitive aging, and behavioral neuroscience with Johns Hopkins School of Public Health and Health Sciences, Department of Mental Health AND University of Maryland Baltimore County, School of Medicine. Sharmin’s Ph.D. training was in public health and nutrition research, with a special focus on nutritional biochemistry. She also received postdoctoral training at the National Institute on Aging (NIA) in cognitive aging and statistical analytics for examining bio-behavioral data. Sharmin has 50+ publications on diet quality, health disparities, cognition, and risk of Alzheimer’s or other chronic diseases (like cancer, heart disease. kidney disease, etc.).
Implementing Data Disaggregation Laws and Regulations
Part 2: Challenges, Solutions, and Community Roles
Thu Quach, Ph.D., President, Asian Health Services
Thu Quach, Ph.D., has worked in public health and health care for 25+ years. Her research, service, and advocacy work have been grounded in her own lived experience as a Vietnam refugee and the struggles her family faced in the health care system. She is currently the President of Asian Health Services (AHS), a federally qualified health center in Northern California serving 50,000 patients in English and 14 languages. With a background in epidemiology, she is involved in research and policy efforts to promote health equity, emphasizing the importance of language justice, data disaggregation and culturally competent mental health. Her research portfolio also includes cancer etiology, reproductive health, environmental health and justice, immigrant health, and racial/ ethnic health disparities. During the pandemic, Dr. Quach assembled an AA&PI multilingual team to provide community testing, contact tracing, and vaccinations. Her recent work has also focused on responding to anti-Asian violence and addressing mental health gaps for this population.
Julia Liou, Chief Executive Officer, Asian Health Services
Julia Liou, MPH, the Chief Executive Officer of Asian Health Services (AHS) is an accomplished, mission-driven executive leader with 20+ years of experience in the healthcare industry. AHS is a community health center that provides medical, dental, and behavioral health services to 50,000 patients in 14 languages. Ms. Liou has led strategic fund development initiatives, pioneered patient and community advocacy campaigns, and has spearheaded key partnerships regionally and statewide in the Oakland Chinatown and Asian community, including the Revive Chinatown Project, and the California Healthy Nail Salon Collaborative. She has led the charge in strategic planning, development, the AHS Business Council, communications, advocacy and fundraising campaigns, and cornerstone relationships. Whether forging coalitions or calling attention to neglected needs, fundraising for civic engagement, or lifting up patient voices to change policies, she continues to champion health equity and language access for vulnerable communities at local, state, and national levels. During her tenure with Asian Health Services, Ms. Liou catapulted AHS’ development successes in donor gifts, capital campaign fundraising, events, and grants from government and foundations. She also led state policy initiatives that resulted in the passage of key legislation at the state level. During the COVID pandemic, she collaborated with health centers throughout the nation through the National Association of Community Health Centers (NACHC) to successfully advocate for a federal funding stream that seeds innovation and technology for community health centers nationwide. Ms. Liou earned her Bachelor of Arts from Wellesley, and Masters in Public Health from UCLA. She sits on numerous boards including Kaiser Permanente National Research Board, California Primary Care Association, and co-chairs NACHC’s Innovation Advisory Council.
Caroline Sanders, Senior Policy Director, California Pan-Ethnic Health Network
Cary Sanders earned a Master of Public Policy from the University of California at Berkeley. Prior to joining CPEHN, Cary worked as a policy analyst for the California Immigrant Policy Center (CIPC) promoting pro-immigrant policies that address and respect the needs and contributions of California’s diverse immigrant communities and their families. She has also worked as Assistant Policy Director for SEIU United Health Care Workers-West representing over 150,000 health care workers in California and as Policy Director for Services, Immigrant Rights and Education Network (SIREN) in San Jose. Cary is proficient in Spanish after having lived and worked in Guatemala.
Karla Thomas, Co-Executive Director, Empowering Pacific Islander Communities (EPIC)
Karla Thomas is of Samoan and Aymara descent based out of Serrano and Tongva land in Southern California. In the last year, she has been serving as the Deputy Director of Empowering Pacific Islander Communities or EPIC, a national advocacy organization based in Los Angeles, California. EPIC serves Pacific Islanders in the U.S. through culture-centered advocacy, research, leadership development and narrative change. Karla’s lived experience, love for her communities, and background in public health have shaped her passion for eliminating Pacific Islander/Indigenous inequities. She continues to build off of 8 years of experience in advocacy, coalition building, research and direct service and hopes to contribute to creating a better future for other young Indigenous generations to come.
Andrew C. Lee, California Policy Manager, Southeast Asia Resource Action Center (SEARAC)
Andrew C. Lee is California Policy Manager at the Southeast Asia Resource Action Center (SEARAC). He manages SEARAC’s state-level policy and legislative advocacy in California. Andrew leads relationships with policymakers, cultivates statewide partnerships, and helps build the advocacy capacity of community leaders as part of SEARAC’s California team. Previously, Andrew was Campaigns Manager at PICO California, the largest faith-based community organizing network in the state. He also served on the external affairs staffs of former California State Controllers John Chiang and Betty Yee, and was a high school special education teacher in South Los Angeles. Andrew is based in Los Angeles.
Keynote address
Jenny R. Yang, Deputy Assistant to the President for Racial Justice and Equity, Domestic Policy Council
Jenny R. Yang serves at the White House Domestic Policy Council as Deputy Assistant to the President for Racial Justice and Equity. She leads DPC’s portfolio across a broad range of equity issues, including criminal justice, democracy and voting, the racial wealth gap, disability policy, LGBTQI+ rights, and Native Affairs. From January 20, 2021 through March 2023, Ms. Yang served as the Director of the Office of Federal Contract Compliance Programs at the U.S. Department of Labor where she led equal opportunity enforcement in federal contracting.
In the Obama-Biden Administration, from 2013-2018, Ms. Yang served as Chair, Vice-Chair, and Commissioner of the U.S. Equal Employment Opportunity Commission where she tackled systemic discrimination, including requiring employers to report pay data and creating a task force to study and prevent harassment.
After her EEOC service, as a Senior Fellow at the Urban Institute, Ms. Yang worked to revitalize anti-discrimination laws to protect workers as structural and technological changes transform work. In addition, as a strategic partner with Working IDEAL, Ms. Yang assisted employers in preventing harassment and promoting equality of opportunity through the design of employment practices.
Prior to that, Ms. Yang spent over a decade representing workers in litigation in private practice and as a Senior Trial Attorney with the United States Department of Justice, Civil Rights Division, Employment Litigation Section. A graduate of Cornell University, she earned a B.A. in Government and a J.D. from NYU School of Law. Ms. Yang served as co-chair of NAPAWF’s first national governing board.
Race and Ethnicity Data Messaging Framework and Strategy
Cassidy Schwartz, Account Director, CLYDE
Cassidy Schwartz is an account director on the public affairs team at CLYDE, a full-service strategic communications agency that helps clients make an impact. She primarily focuses on coalition building and strategic communications campaigns on behalf of pro-democracy organizations. Before joining CLYDE, Cassidy channeled her energy into issue advocacy and public policy efforts, with a specific focus on climate solutions and housing accessibility across sectors, including business, non-profit organizations, and local government.
Austin Adams, Account Director, CLYDE
Austin Adams joined CLYDE’s public affairs team as an account director after four years designing and leading public affairs campaigns for a progressive think tank, driving public policy change on digital equity and online civil rights. At CLYDE, he works with clients in the non-profit and pro-democracy space to craft clear, persuasive messaging that moves audiences to action. His prior experience includes journalism and political campaigns.
Jake Gómez, Public Affairs Specialist, CLYDE
Jake Gómez is an experienced public affairs specialist at CLYDE, helping to build strategic campaigns that leverage media relations, social media, and other tactics to meet the moment. He has several years of expertise in program and grassroots organizing, particularly in the international development and non profit space. He has advised clients across subject areas including pro-democracy, Middle Eastern affairs, LGBTQ+ advocacy, and renewable energy.
Amy Torres, Executive Director, New Jersey Alliance for Immigrant Justice
Amy Torres is Executive Director for the New Jersey Alliance for Immigrant Justice (NJAIJ). NJAIJ is the state’s largest immigration coalition, bringing together over 50 organizations to fight for policies that empower and protect immigrants. Under Torres’s leadership, NJAIJ fought for the East Coast’s first ban on immigration detention contracts, advocated for the expansion of state Medicaid to cover undocumented children, and has served as a watchdog for New Jersey’s Drivers Licenses for All expansion. Firmly rooted in Torres’s identity is their experience as a Filipinx American and the core belief that human rights and liberties should not be subject to change because of something as arbitrary as border, birthplace, or paperwork. Prior to joining NJAIJ, Torres led immigrants rights and policy advocacy work in NYC, with a focus on Asian American and Pacific Islander communities.
Data Privacy Considerations
Claire McKay Bowen, Principal Research Associate and Statistical Methods Group Lead at the Urban Institute
Claire McKay Bowen (she/her) is a principal research associate in the Center on Labor, Human Services, and Population and leads the Statistical Methods Group at the Urban Institute. Her research primarily focuses on developing technical and policy solutions to safely expand access to confidential data that advances evidence-based policy-making. She also has interest in improving science communication and integrating data equity into the data privacy process. In 2021, the Committee of Presidents of Statistical Societies identified her as an emerging leader in statistics for her technical contributions and leadership to statistics and the field of data privacy and confidentiality. Further, she is a member of the Census Scientific Advisory Committee and several other data governance and data privacy committees as well as an adjunct professor at Stonehill College.
Terry Ao Minnis, Vice President of Census and Voting Programs, Asian Americans Advancing Justice | AAJC
Terry Ao Minnis is the Vice President of the census and voting programs for Asian Americans Advancing Justice | AAJC. Mrs. Minnis was part of the litigation team in LUPE v. Ross (D. Md. and 4th Cir.) (LUPE I) that challenged the administration’s attempted addition of a citizenship question to the 2020 decennial census. The team, including Mrs. Minnis, went back to court in LUPE v. Ross (D. Md.) (LUPE II) to challenge the administration’s plan to collect and provide incomplete citizenship data to the states for purposes of redistricting; the subsequent Presidential memorandum seeking to exclude undocumented immigrants from the constitutionally mandated apportionment; and the Census Bureau’s announced plan to end the counting of non-responsive individuals a month earlier than scheduled as an unconstitutional and racially discriminatory scheme intended to deprive Latinos, Asian Americans, and noncitizens of equal representation. Mrs. Minnis experience on the census spans two decades, having served as a leading authority on census campaigns in 2010 and 2020. Currently, Mrs. Minnis co-chairs the Leadership Conference on Civil and Human Rights’ Census Task Force. In addition, she was part of the U.S Department of Commerce’s 2010 Census Advisory Committee from 2002 through 2011 and the Census Bureau’s National Advisory Committee on Racial, Ethnic and Other Populations for two terms from 2013 through 2019.
Mara Youdelman, Managing Director for Federal Advocacy, National Health Law Program
Mara Youdelman is Managing Director for Federal Advocacy at the National Health Law Program. Mara has worked at the National Health Law Program since 2000 on issues that include Medicaid & CHIP, the Affordable Care Act, language access, and civil rights. Mara coordinates the National Health Law Program’s federal legislative and administrative work, leading the organization’s efforts at protecting and expanding access to and quality of health care for low-income and underserved populations. Recognized as a national expert on language access in health care settings, Mara has written a number of reports and participated on expert advisory panels on the subject. Mara also served as a Founding Commissioner for the Certification Commission for Healthcare Interpreters (www.cchicertification.org). She was named a 2010 Health Reform Champion by SHIRE (the Summit Health Institute for Research and Education) and a 2011 Language Access Champion by the National Council on Interpreting in Health Care (NCIHC).
Administrative Advocacy
Rosalind Deborah Gold, Chief Public Policy Officer, NALEO Educational Fund
Rosalind Gold serves as Chief Public Policy Officer with the NALEO Educational Fund, where she has worked for more than three decades on policy analysis and research for the organization’s Latino civic engagement efforts. Ms. Gold coordinates the research for several of the NALEO Educational Fund’s publications, including its Directory of Latino Elected Officials, the biennial Latino Election Handbook, and the Latino Election Profiles. Ms. Gold has extensive policy expertise in the areas of newcomer civic integration, election reform, voting rights, redistricting and the Census. She has delivered testimony before many public and private committee and commission hearings, and has served on governmental commissions, including the California State HAVA Plan Advisory Committee, and the City of Los Angeles Municipal Elections Reform Commission. She also currently serves on California Secretary of State’s Motor Voter Task Force, and the Board of the Directors of OpenSecrets. In addition, Ms. Gold is honored to be the President of the Culver City South Bay Gesneriad Society, which works to promote widespread interest in the propagation and culture of gesneriads. Ms. Gold received her J.D. from Harvard Law School and B.A. from Pomona College in Claremont, California.
Anita Gundanna, Co-Executive Director, Coalition for Asian American Children and Families (CACF)
Anita Gundanna (she/her) joined CACF as Co-Executive Director in April 2017. She has worked throughout her career to prevent and address violence against women and children, and to promote healthy families, primarily in minority and immigrant communities of New York City. Prior to her return to the Coalition for Asian American Children and Families (CACF), Anita worked as a consultant with a number of small and growing community-based non-profit organizations mostly serving Asian American and immigrant communities.
Michelle Riordan-Nold, Executive Director, CT Data Collaborative
Named Executive Director of the CT Data Collaborative in February 2014, Ms. Riordan-Nold is responsible for executing the vision and strategy of the CT Data which is a user-driven, public-private partnership that educates, liberates, curates, and democratizes data for public consumption to help drive planning, policy, budgeting and decision making in Connecticut. In her tenure at CTData, she has grown the organization from 1 full time staff person to 12. Ms. Riordan-Nold has created and developed new data service offerings including the CTData Academy, building an integrated data system initiative called the Hartford Data Collaborative, and in 2022 launching a social enterprise, CTData Strategic Planning that coaches nonprofits on how to make data an organizational strategic asset. Ms. Riordan-Nold holds a bachelor’s degree in Mathematics from Boston College and a master’s degree in public policy from the University of Chicago. In her career, she has had the opportunity to work in all sectors of the economy – private, nonprofit, and government.
Manisha Srivastava, Policy Coordinator and Economist in the Data & Policy Analytics unit at the Connecticut Office of Policy & Management (OPM)
Manisha Srivastava, MPA, MA, is a Policy Coordinator and Economist in the Data & Policy Analytics unit at the Connecticut Office of Policy & Management (OPM) where she executes initiatives to generate policy insights, measure outcomes, and advance research. More recently Manisha has been managing Connecticut’s Housing and Segregation study required per legislative mandate, as well as developing a program and expenditures dashboard that will summarize state program utilizers including demographics. Manisha leads the convening for Connecticut’s Equity Learning Community for state agencies and is participating in an Equity in Practice Learning Community, a training and technical assistance program out of UPenn to center racial equity in data integration. She is also collaborating with the Children’s Behavioral Health Partnership in Connecticut to understand disparities in behavioral health utilization. Manisha has authored numerous publications and has had her work cited in the CT Mirror, Hartford Courant, and other local and national media including The Pew Charitable Trusts, The Atlantic, and The Tax Foundation. Manisha currently serves on the Board for the CT Retirement Security Authority and on the Advisory Board for the Federal Reserve Bank of Boston’s New England Public Policy Center.
Building Data Literacy for CBOs serving Communities of Color
Chris Dick, Founder, Demographic Analytics Advisors
Chris Dick is the founder of Demographic Analytics Advisors where he helps organizations to create effective change using applied demography and data science. His goal is to understand the recipe for success through data use and implement it within the government space. Prior to founding his company he worked at Civis Analytics as the Managing Director of their Public Sector practice where he worked with local, state, and federal government organizations. Prior to Civis, he was a statistician at the Census Bureau, ending his time there as the Chief of the Population Evaluation, Analysis & Projections Branch, where he oversaw, among other things, the planning for the Demographic Analysis for the 2020 Census.
Selena Tan, Senior Associate, PolicyLink
Selena Tan is a Senior Associate at PolicyLink, and works to advance equitable decision making in policy through supporting community access to power. With the National Equity Atlas team, she leads the Racial Equity Data Lab and National Equity Atlas Fellowship where community advocates and leaders of color are supported to use data as a tool in their campaigns for community action, decision making, and holding policymakers accountable. Prior to this role, she served as a program officer at the Annie E. Casey Foundation, and previously managed the Strategic Data Project fellowship at the Center for Education Policy Research at Harvard University. She holds a bachelor’s degree in psychology with a minor in education studies from the University of California, Los Angeles, and a master’s in public administration from the Maxwell School at Syracuse University.
Paola Aracely Ilescas, Senior Programs Manager, Latino Coalition for a Healthy California
Paola Aracely Ilescas grew up in North County San Diego, a region with both rural and densely populated regions with strong immigrant and agricultural roots. She experienced and witnessed the inequities in her community, which impulsed her to work towards providing and connecting her community to life saving resources. Currently at LCHC, she is the Senior Programs Manager, where she leads and supports the development and implementation of multiple programs and initiatives that centers community engagement and equity, including the creation of leadership capacity building via curriculums. As a San Diego Leadership Alumnae, she believes in building leadership pipelines within communities. After complementing the CVCC Promotora Academy, she also prioritized the importance of leading with other community members at all levels of programming to create equitable and transformative outcomes. Throughout both her career and personal trajectory, Paola has come to learn that eliminating health inequities requires multi-sector partnerships and action. Paola is proud of being Vee’neh Xiza, the Zapotec name of her town and people. Outside her role, she enjoys hiking the hills of North County, walking her three dogs, yoga, and supporting local businesses in her community.
Marjorie A. Innocent, Ph.D., Director of Learning and Impact, NAACP
Dr. Marjorie Innocent serves as director of learning and impact at the NAACP. In this capacity, she is responsible for internal structures and systems for capturing metrics, monitoring progress, reporting, and cross-team sharing and learning. She leads transformative, interdisciplinary research and evaluation projects in collaboration with external partners. Along with a working team, she also develops and communicates the Association’s learning impacts to a broad audience of stakeholders to promote the NAACP as a critical resource and advance equity-centered policies as standard practice. Marjorie earned her PhD in health and social policy from the Johns Hopkins Bloomberg School of Public Health and has published numerous articles and writings covering various health and education-related topics. She is a lover of God, fairness, music, and culture.
Strategy Session
Dr. Laura E. Durso, Founder, Harmonic Strategies
Dr. Laura E. Durso is the founder of Harmonic Strategies, a DC-based consulting practice working with clients at the intersection of research and policy. Previously, Dr. Durso was the Chief of Staff at the Office for Civil Rights at the U.S. Department of Health and Human Services where she helped lead the civil rights and health information privacy agenda under the Biden-Harris Administration. Prior to public service, she was the Executive Director and Chief Learning Officer of the Whitman-Walker Institute, where she led the strategic integration of research, policy, and education for the Whitman-Walker community health enterprise, and was the Vice President of the LGBTQ Research and Communications Project at the Center for American Progress. A native New Yorker, Dr. Durso holds a BA in psychology from Harvard College and master’s and doctoral degrees in clinical psychology from the University of Hawai’i at Manoa.
Closing Remarks
Denice Ross, Deputy U.S. Chief Technology Officer for Tech Capacity (invited)
Denice Ross is the Deputy U.S. CTO for Tech Capacity in the White House where she focuses on building conduits between federal tech and data policy and its implementation in state, Tribal, local, and territorial governments. She also co-chairs the Subcommittee on Equitable Data charged with using data to implement the Administration’s equity agenda. Denice most recently served as the nation’s Chief Data Scientist, and previously co-led the Census Quality Reinforcement Task Force. Denice served as a data leader both in the Obama Administration and in local government in the City of New Orleans. Before government, Denice co-led the Data Center in New Orleans, a local nonprofit intermediary that was vital for the region’s equitable recovery from Hurricane Katrina.
How Race Categories on U.S. Census Forms Have Evolved
This recent article from the New York Times overviews how race and ethnicity data collection in the U.S. has evolved over the years, providing context for our work to further disaggregate these data.
Implementing Data Disaggregation Laws and Regulations panel resources
Data Disaggregation by Race or Ethnicity: A Review of State Laws and Bills
This is a draft report on the status of data disaggregation policy in all 50 states. Key findings were discussed in the Navigating and Improving State Data Systems panel. Note that this report will be released more broadly at a later date, so please do not share beyond your organization.
Resource hub from the UCLA Center for Health Policy Research
This resource hub from the UCLA Center for Health Policy Research Data Equity Center compiles a variety of resources on data disaggregation and data equity.
Resources from the Network for Public Health Law
As discussed during UCLA’s presentation on navigating state data systems, the Network for Public Health Law has published many resources on public health data.
MyMDThink portal
Example of an integrated health and human services portal from Maryland, mentioned during the navigating state data systems panel.
Race and Ethnicity Data Messaging Framework and Strategy panel resources
Your Community Counts | Organizing Toolkit for Data Equity
This toolkit was discussed in the Race and Ethnicity Data Messaging Framework and Strategy panel and can be used to support your messaging/organizing activities.
Administrative Advocacy panel resources
CT Data Collaborative
Research and resources from the CT Data Collaborative, which works to connect people and data to promote informed decision-making and to advance equity in Connecticut.
Invisible No More campaign
Learn more about the Coalition for Asian American Children and Families’ Invisible No More campaign to advance data disaggregation for AAPI communities.
Data Privacy panel resources
Resources from the National Health Law Program:
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Demographic Data Collection in Medicaid & CHIP: CMS Authority to Collect Race & Ethnicity Data, NHeLP
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The Constitutionality of Demographic Data Collection, NHeLP
NHeLP’s Data Privacy Series:
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Administrative Data: Providing Information to Advance Autonomy and Drive Equality, Movement Advancement Project
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Striking the Balance: Approaches to Racial Equitable Data Collection that Protect Privacy in Health, Race Forward
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This Data Not That Data: Big Data, Privacy, and the Impact on People with Disabilities, Disability Rights Education and Defense Fund
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Data and Discrimination: Improving Data Privacy for Low-Income Older Adults in Managed Care, Justice in Aging
Building Data Literacy panel resources
National Equity Atlas Fellowship
Information on the National Equity Atlas Fellowship, which is designed to equip community leaders of color with skills and tools to leverage data to advance racial and economic equity.
Latino Coalition for a Healthy California promotores program
Learn more about LCHC’s promotores program, which works to incorporate promotores into its community programming, build workforce pipelines, and bring community voices to LCHC’s advocacy.
Black Progress Index
Information on the Black Progress Index, which supports a greater understanding of the well-being of Black people and the conditions that surround their lives